insanely beautiful. Unfortunately, it is difficult to capture her pretty face on camera. It takes all of her energy just to hold her head up. Then she has nystagmus of the eyes (meaning they bounce all over the place) which makes her look cross eyed at times........ but when I snapped
this picture it literally took my breath away. It made me cry. In this picture, I can imagine my girl not having a disability. Just a "regular" 14 year old girl. I tell myself everyday not to go there. She is who she is.......but that thought creeps into my head at times and nestles there for awhile.......
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Everyday I lay eyes on her, my heart aches. She is vulnerable, totally dependent on me for her every need......she is innocent, has nothing but love to give to those who want it, and works so hard for every little thing, things we all take for granted, like holding our heads up. I am filled with love, worry, admiration, wonder, and pain for her. I wonder everyday what her future holds...........
I do know this......she was given to me for a reason, and everyday I try to do right by her. When you know her, she touches your heart and leaves a permanent mark there........she is truly beautiful inside and out.
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Supplies:
Noel Mignon's Rise and Shine kit.
JUST a REMINDER: Blog candy drawing this Sunday! Go
HERE if you haven't put your name in yet!